Day 9 post op


This blog was not only created for communication but to help others who are experiencing the same type tumor and recovery. We try to be as detailed as possible about recovery so that others can benefit. Thanks for being patient!

Two things that are not stressed enough upon hospital discharge: the importance of walking (increases blood supply to the brain), and ice packs to the head (reduces swelling). We are doing ice packs for 20/every hour when awake. Stay off the wedge as much as possible during the day. The wedge is very hard and doesn’t help with neck and back spasms, but its great at night with keeping the 45 degree angle. We still check in on her every 2 hours, as she has slid past 45 degrees and patients post op cannot lie in that position more than two hours before becoming dangerous. We have been frustrated with the lack of advice given post op but I think you have to find what works best for you.

As you know, the last few days have been difficult. Yesterday morning as Frank prepared for work he noticed the birds outside chirping loudly. It was becoming annoying. Finally, he turned off his Fox TV news and just sat for a minute. He was led to pick up his Jesus Calling devotional and exhausted as he was he began to read the daily verse.
As you listen to the birds calling to one another, hear also My love call to you. I speak to you continually: sights, sounds, thoughts, impressions, scriptures. You will seek Me and find Me when you seek Me with your whole being.

Last night Anna was able to sleep off and on for 5 hours!!!! Praise! The swelling pain is still present and terrible at times but it is making progress. Eye and nose pain have been present today. The tumor was lying on the optic nerve so healing is taking place. Heightened senses have also been worse post op. light sensitivity, smell and hearing. All this will go away in time. She is walking even when she doesn’t feel like getting up. She is very weak. We are starting nutritional supplements today. She has lost 11 pounds. Even though she is eating, she needs the nutritional values and vitamins to help her brain to heal.

We couldn’t be happier to see a new day! Continue positive words and encouragement to her. It’s easy to become complacent and worn down.

Specific prayers for rest, reduction of swelling, and Perseverance. Love, Jill

Today’s pix….Anna’s incision, working out the hair tangles and Anna and I last year during my chemo. I hope I can bring her strength as much as she did to me. She never let me quit!





3 responses »

  1. Thanks for sharing all of this. I am 25 and in the process of getting all my records to SBI for a 13mm pineal cyst. I have really found your blog very helpful and also reassuring that I am not alone in this. I look forward to to following your continued progress and will keep you in my prayers!

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